by Thomas Martin
It wasn’t actually a hug.
My grandfather’s strong, sinewy
arms supported his sister Marie by her upper arms as they stood gazing into
each other’s eyes. Marie was slightly older than my eighty-year-old
grandfather. She stood there looking so frail, so vulnerable. Even from the
next room I could see the sorrow in her eyes. Aunt Marie came from the old
school where a woman wore her hair long throughout her life. She normally kept
it neatly in a bun, but right now, her gray hair hung loosely down her back. She
traveled from Wisconsin
to see my grandfather one last time. My grandfather was dying of cancer, treatable
cancer had he brought it to his doctor’s attention in time. Instead, he waited
and the wait would prove to be fatal. When I looked at him that day I felt he
must be alright. His hair was still pitch black, he was strong and trim and a
man of few words – this couldn’t be a man who was close to death. I watched my
grandfather and Aunt Marie almost as though I should turn away, as if I was
watching something too personal, a moment which only the two of them should
share. As a mere child, I was not able to fully understand the significance of
this hug yet I knew I was witnessing something important, something which would
play out in my own life
My time came when I turned 50.
I too was dying, my heart having failed me. I was diagnosed
with cardiomyopathy dilated idiopathic. It is the medical term for a heart that
for no known reason is slowly giving up the fight. It was more than a shock as
I had been healthy all my life. No chronic diseases, no hospitalizations,
nothing. I was tall and trim and had no reason to believe the rest of my life
would not be the same as before. I had been somewhat short of breath lately, nothing
serious, but this diagnosis changed my otherwise positive outlook of my future.
I tried medicines, holistic doctors, leave from work, but my heart was not
responding. It seemed focused on giving up. How could a part of me be so intent
on dying when I so desperately wanted to live? Just like my grandfather, it
appeared I had ignored signs of the problem and had waited too long to seek
medical help.
My life became one of time spent in the hospital with
periodic visits to my home. I first swelled up with fluid, feeling as if I was
drowning. Three liters of fluid were extracted from my body on my first
hospital visit. After several days in the hospital, I went home only to return
ten days later. This time was far more serious. I had horribly painful and
potentially fatal blood clots in my lungs. The doctors went in through a vein
in my leg, ran a line to my lungs and dissolved them. After another several
days in the hospital I was again sent home with a blood thinning drug. The
problem was is that it did not work on me. Within days my arms filled with
clots and swelled up like Popeye the Sailor Man. Upon my next re-admission to
the hospital, doctors no longer were willing to let me go home and live alone.
It was a cousin who offered to let me live with her and her family.
After a life of a single man, I was now the “fifth child” at the table, albeit
a very sick child. They stayed by me through trials I no longer care to
remember. In spite of my resolve and my family’s love, I kept getting sicker,
weaker and less responsive to treatment.
It was my doctor who finally gave me the bad news. He told me
he wanted to put me on the heart transplant list. In the meantime, he told me,
a heart assist device would be implanted to ensure I lived until a heart became
available. This was news far more than simply devastating. I grieved as one
grieves the loss of a child or a parent. My life would never be the same.
I continued my struggle, I would not give up and I would not
give in to surgery. Certainly someone, somewhere had the solution to my
problem. But after those multiple stays in the hospital, I realized my options
were limited. It was on the last visit to my local emergency room that my
doctor told me my problem needed to be addressed immediately. He was ordering
an ambulance to take me to a hospital in San Diego known for transplants and
this specific type of heart assist device called an LVAD.
The ambulance ride to San
Diego would likely be the longest of my life, even
though it was less than ninety minutes. I knew what lay ahead for me and I was
afraid. I finally asked the nurse in the back of the ambulance to prop up my
head so I could see him more clearly. I’m
sorry, I said, but you have to talk
to me, you have to divert my attention from what awaits me at the hospital. Tell
me about yourself, tell me about your likes and dislikes. Tell me about your
family and your goals. He happily obliged and I discovered much about my
nurse, Joe and the time passed quickly. I am grateful to him for his willingness
to open up to me. But the hospital still lay ahead and the surgery which I so
feared
My world seemed to come crashing inward but my family and my
closest friends would not abandon me. They came to me, called me and more than
one family member and friend offered their homes to me after surgery. I was
overwhelmed. I knew I loved and cared about them, but somehow never thought I
was worthy enough to be loved in turn. It was an epiphany which I still can
barely believe. But here they were, there for me in my time of need.
But it was once again a hug which made me recall my
grandfather and my Aunt Marie. It was from one of my dearest cousins, one who
in her own life had endured tragedy beyond what any loving person should have
to experience. This cousin is just six months younger than me and has always
been a part of my life. We experienced high school and college together. I
celebrated her graduation from college and later her marriage to a wonderful
man. Years later, her life changed forever when her husband was killed in a
tragic accident leaving behind my cousin and their four young daughters. These
are examples of the joys and the tribulations we share, the same type which I
knew my grandfather saw in his sister’s eyes. My Aunt Marie saw her brother
whom she had spent a lifetime loving, slowly slipping away and knowing she
would never again see him alive.
A child cannot understand a lifetime of joy and despair
which two adults share, at least I could not. During the hug with my cousin, I
looked deeply into her eyes. Like my grandfather, I had nothing to say yet
tears began rolling down my cheeks. I saw to her soul and saw the tragedies she
had endured and now I was asking her to endure mine. I don’t know what she saw
except a loved one whose time was limited without a life-altering procedure.
The decision was made and the implant surgery went forward. It
was by far the most frightening and upsetting thing I had every endured. I
cried often. Actually, I became quite brilliant at crying, as it took little to
set me to weeping. My family and friends were with me though, with me through
the ordeal. They stayed by my side as I laid anesthetized in my bed with tubes
running out of my body. They came to see me as I healed in the hospital. Their
love got me through every single day.
I am home now, feeling stronger and better than I realize I
had felt in over a year. But I think back to those hugs, both my grandfather’s
and my own. They were both times when words were useless, when love spanning
decades was communicated in a single moment.
No, I guess it wasn’t actually a hug for me either. It was a
bond that went beyond blood, went beyond friendship. It was seeing our lives
both separate and together and wanting to live just a little while longer to
enjoy the time we might still have.
Unlike my grandfather, it appears I have many years ahead of
me. I pray I choose wisely how I live them.
Copyright © 2020, Thomas Martin, All Rights Reserved
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